This is so incredibly true…and the questions can be frustrating when the caregiver is constantly asked if the dystonia patient is better, when we have a progressive disorder that doesn’t get better…not in the many years we have had it. I quoted the last part of the last line before my daughter finished reading it to me because I know what I wish people would ask. My hubby was totally honest once, and just mentioned I had a seizure…and things weren’t good. That’s pretty much always the answer. He can’t always truthfully sugar coat the realities with which we live. Abby, my daughter, is a huge part of the care giving process in this home. It’s why she is considering being a nurse. She comments on this post…it’s sweet, but heartbreaking to this mommy’s heart. Please read! Josh Farnsworth’s wife,Rachel Farnsworth, writes the piece. Just click on the image above this paragraph. Or here…. https://www.mydystonialife.blog/2019/07/forgetting-caregiver.html
